Cookies, Grain Free, Raw, Snacks

Grain-free Cookie Dough for One and a little on my battle with chronic illness

I’m so sorry to admit that I’ve seriously neglected this lovely lil blog of mine…but for a good reason. Let me explain.

Last year in June I was diagnosed with chronic late stage neurological lyme disease. At that time I’d been suffering for years with persistent symptoms since age 4. It started with childhood asthma, allergies, headaches, migraines with nausea and auras, IBS, and chronic fatigue. Later it progressed to severe brain fog, (like forgetting which side of the faucet is hot or cold, and finding myself in a room and not realizing how i got there…), stuttering, disorientation, hallucinations,, panic, rage, mood swings/irritability and general delirium, along with physically disabling symptoms like severe body wide musculskeletal pain, seizures, vasovagal attacks, tachycardia, arrhythmia, dizzy spells, fainting, loss of balance, severe chronic nausea, bouts of vomiting, shortness of breath, chest pain, profuse sweating, shaking chills, swollen painful lymph nodes, irregular body temperature regulation, trouble with vision and hearing, twitches, fasciculations, tremors, low grade fevers, constant exhaustion that feels as if the air around me is a constant weight of 1,000 bricks pushing down against my body, I could go on and on with my close to 200 symptoms. In recent years I’ve developed/been diagnosed with a chronic form of leukopenia (abnormally low white blood cell count) which makes it difficult for my body to fight off infections, bacteria and other harmful stuff…POTS (a severe condition called postural orthostatic tachycardia syndrome), hypothyroidism, chronic fatigue fatigue syndrome, adenomyosis (type of endometreosis), multiple chemical sensitivity, multiple food allergies, ovarian cysts, numerous infections such as chronic UTI’s, liver and kidney infections, low natural killer cells and more. I’m now intolerant of heat, alcohol, makeup, lotions, shampoos, etc. and hypersensitive to light, sounds and especially smells (MCS). Anything and everything seems to send me into a flare-up these days. I should really just live in a bubble lol. I also lost 25 lbs rapidly and despite pushing myself to eat through the pain I dropped down to about 85 lbs at my sickest (I’m 5’5″, so no bueno). Being so underweight created a whole slew of other serious health problems as well.

It took literally millions of dollars on different specialists and extensive testing, and decades went by before I got the correct diagnoses, the ones that explained it all and connected the dots (dots being symptoms and also disorders/syndromes/conditions). I thought that was it when I was diagnosed with late-stage chronic neurological lyme, as well as HH6 virus, and an acute form of chronic pneumonia. I really had no clue what I was in for and that there was more to it than lyme. When my LLMD told me I’d have a long, tough road ahead of me, I had no idea just how true that was.

6+ months of loads of antibiotics and a PICC line, and I had gotten so sick that most days I was completely bedbound. I could barely walk or talk, I would lay in bed in agonizing pain, none of the prescription pain meds would be of relief, and my herbal meds were just not enough. At times I was so weak I needed to be fed. I was losing the little bit of myself was left, including my hope. In November I took a break from antibiotics since it was destroying my digestive system and did 5 months of low level laser therapy and detoxing, which helped some symptoms but others are now worse. I was getting so bad that I couldn’t get any sleep for weeks and I ended up in the ER with a mass in my large intestines.

I was so weak and riddled with pain, but then the universe intervened and my Dr. suggested a mold test for our house. Turns out we were living in a house which in my dr.s words were “unliveable conditions” due to extremely high infestations of toxic mold, including black mold (all the mold was invisible.) Once the mold toxins (mycotoxins) colonize in the body it becomes a multisystemic neuroimmune disease and never ending war. For the unlucky people like me who don’t have the necessary antibodies in their immune systems to fight off the mycotoxins, even a brief exposure to indoor mold can lead to mycotoxicosis which is full blown systemic disease, where the mycotoxins invade and attack every single living cell and organ in the mold exposed victim. Mycotoxicosis is fatal if left untreated, or if the treatment period begins too late and the mycotoxins have already destroyed organs, or crated cancerous tumors. We now know I have been battling this dreadful disease for years. My mycotoxin test came back positive even after 4 1/2 months of moving from the moldy house. I was told this means the levels of mycotoxins in my body were really high since people with mold illness generally have to “provoke” the mycotoxins to be released from fat cells in the body. This is often done with sauna and heat detoxing, and since I’ve been so sick I sweat almost constantly which sucks but it’s a natural detox. Unfortunately I will always get very sick from mold, but with A LOT of intensive treatment, detoxing and time I should get better, and many of my mycotoxicosis symptoms should go away.

Long term exposure to toxic mold damages the brain and leaves behind permanent complications after even after years of treatment. Unfortunately, I lived in the “moldy house” for over 5 years, and we suspect most of the previous houses I lived in had mold due to my progressive mycotoxicosis symptoms throughout my life. My fibromyalgia is from the mold exposure I’ve been told, and a lot of people with fibro actually have mycotoxicosis. My father bravely battled many forms of cancer before he finally died from brain cancer. I believe his death could’ve been mold related, since mycotoxicosis commonly leads to brain lesions and tumors, as well as cancer (the most common mycotoxins are aflatoxins; highly carcinogenic toxins, and trichothecenes; dangerous neurotoxins which are the most fatal of all the mycotoxins)

It’s estimated that 500,000 people in the U.S. die every year from mycotoxicosis, and it’s likely to be many more since it goes so undiagnosed. Many dr.’s don’t know to test for mycotoxins, and may even go as far as to say mold can’t make you sick! The fact is mold can make people very ill and myctoxicosis takes lives with organ failure, cancer, SIDS (sudden infant death syndrome), anaphylaxis, and more. I thank God and the Universe because I honestly don’t know if I’d be alive today if I’d stayed in that house the way my body was going, my organs were set to fail. As of now there is no telling the extent of the damage to my brain, I have to wait to get brain scan and lots of other tests. I still have progressing and emerging symptoms, and have been wheelchair bound for the past month. I had to get a port implanted in my chest for my regular IV infusions. There is no cure for mycotoxicosis, and I know I have a long, long way to go and it will only get harder from the toxin die-off as they slowly up the dosages of my meds and infusions, but I am determined to win this.  Now that I finally found the missing piece of my chronic illness puzzle, I have nothing but gratitude and a new sense of hope. My fiancé who lived with me for about a year also got very sick from the mold but not to my degree, fortunately. It’s so very hard to watch him suffer in some of the ways I do. After months of research we have found an environmental illness treatment center out of state which has a high success rate for mycotoxicosis. If all goes according to plan, we should be leaving in june to stay for a month for intensive treatment.

I will be honest, so many times I lose hope, but I know that there is a reason for me to go through this and giving up is just not an option. Being chronically ill is tough, but I am tougher! ❤

What Is Mold Illness? (Mycotoxicosis)

Mold Illness: “Mold Illness is not an allergy. It is an inflammation within the body which is caused by an immune system that has gone haywire. The term “mold illness” is a subcategory of biotoxin illness called Chronic Inflammatory Response Syndrome (CIRS). Some individuals have a genetic susceptibility to develop mold illness based on their immune response genes (HLA–DR). The genetics are clear: occurrence of specific HLA types are found in about 25% of the population.”


Mycotoxicosis Symptoms

Lyme Disease

Lyme has surpassed AIDS as the fastest growing infectious disease in the U.S. right now. Lyme is relatively easy to treat if caught very early, however once it’s progressed to it’s late stages becomes chronic, debilitating and difficult to treat.
“It is caused by a type of bacterium called a spirochete. An infected tick can transmit the spirochetes to the humans and animals it bites. There is some debate to whether other bugs can transmit it, or if it is sexually transmitted. It is however transmitted in utero. It is a multi systemic inflammatory infection. If left untreated it will travel from your skin, through the bloodstream, joints, organs, and will establish itself in various body tissues, and can cause a number of symptoms including neuropsychiatric manifestations.”

Lyme Disease Symptoms

Meanwhile, until I leave for treatment I have a healthy, easy and thoroughly enjoyable treat like cookie dough to turn to keep my spirits up 😉

Vegan Cookie Dough


Grain Free Cookie Dough

Vegan, Gluten-Free, Grain-Free, Refined Sugar-Free, Soy-Free

{adapted from The Live In Kitchen}

yield: 1 serving | prep time: 5 mins | total time: 5 mins

Ingredients:

6 tbsp almond meal/flour
2 tbsp virgin unrefined coconut oil, melted or softened 
2 tbsp coconut nectar, or maple syrup
1/2 tsp pure vanilla extract
dash of salt, to taste
vegan chocolate chips or carob chips, to taste

Instructions:

In a small bowl mix together coconut oil, sweetener, and vanilla.
Add flour and salt until well combined, folding in chips last.
Chill for best results…or scarf down immediately. Enjoy!


Advertisements

9 thoughts on “Grain-free Cookie Dough for One and a little on my battle with chronic illness”

  1. I LOVE this treat! Oh how I’ve missed cookie dough. I’ve made a little batch about 4 times in the last few days adding chunks of (very) dark chocolate instead of enjoy life chips. This is is the best and most authentic recipe, and so easy! I made a batch for my hubs last night, he loved it too!
    Thank you for sharing this; I’m so happy to have a treat that won’t cause negative side effects.

  2. Hey Wendy! You’re very welcome, I’m thrilled to hear you and your hubs have enjoyed it as much as I do! It really is a great lil treat, and coconut oil has a TON of health benefits! I like to mix it in with dairy free, sugar free ice cream! 😉

    Love and Light ❤

  3. As I was reading your story, before I got to the end, I was like “she’s living in a moldy house” — all those are symptoms of toxic mold and I’m so sorry you’re dealing with it, and that it was misdiagnosed for so long. It so often is. Have you checked out the bulletproof exec.com site for mold diet info? (no personal interest, just been checking into it myself for my own mold detoxing). Diet becomes so important with mold issues.

  4. Toxic mold is so very dangerous and I wish more people were aware. Big problem is most dr.s don’t even know to test for. I recently started treatment at a center that treats for mycotoxicosis. They have me following a strict Yeast/Candida free, gluten free diet. I’ve been much worse from the meds and detoxing (die off) but hoping in time I will see improvements! I’m vegan so I don’t think the bulletproof diet would be right for me, but hank you for mentioning it, it seems to work for a lot of people.

    Love and Light ❤

  5. You have described my story exactly minus the lyme disease. Thanks for sharing and persevering through this. It is a looonnnggg journey but there is hope. I was initially made sick after we had a minor issue with mold in our home a few years back but i got better and seemed like things were okay until working for several years in a building and office with high levels of certain mycotoxins threw me over the edge and its been crazy since but I am hopeful that one day I will be back to the old me.
    Getting the word out there is key. I share with doctors, local schools and parents the dangers of living in homes and or buildings with poor indoor air quality and mold.
    Hopefully people will wake up on this issue soon!
    God bless you!
    La Chica Organica
    http://www.LaChicaOrganica.wordpress.com

    1. Wow I just realized I haven’t replied to this yet, I’m so sorry!

      Keep on getting the word out! The world needs more people who will share their stories to help others. If I may ask, how did you get better? I’ve been in a mostly mold-free environment for over a year now but I continue to get worse despite treatment and detoxing. My health is deteriorating fast and I feel hopeless some days but I refuse to let this disease win.

      I wish you all the bets in your journey.

      Love and Light ❤

      1. Hi Claire,
        No worries hun. With the way we feel I completely understand not getting back to all comments and posts right away. 🙂
        May I ask where you got treatment?
        I am better but not 100%. I would say that I have about 50% or more to go before being the old me. I still react violently to chemicals and moldy environments so I stay away from them like the plague. For me life is pretty isolating. I have only a handful of places I can go where I don’t get sick. It is debilitating and lonely at times. I am hoping to follow through with my treatment soon and hopefully have some more relief and be more of a normal person. I haven’t been able to follow through with my treatment due to finances so we are praying we’ll have the money to follow through with what has been recommended for me.
        The best things I have done after leaving the office that was making me sick has been avoidance of all toxins, that means everything in food, cosmetics, home goods etc. I also run heavy duty hepa filters all throughout our home 24-7.
        I make most of my beauty and cleaning supplies too as I cant tolerate chemicals of any kind.
        I follow a grain-free diet as best as possible and make everything from scratch so I know what im putting into my body.
        If I can help you any further please let me know. You can also find lots of helpful info on my blogs, La Chica Organica and Moms Mold Resources.
        Wishing you healing and hope.
        God bless you.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s